This year it was in Coolingatta/Tweed Heads and organised
by J & S who are the lovely parents of Amy who sadly passed away in October 07. It was emotional for all of us knowing Amy wasn't with us but so much more so for J & S as you can imagine. They put on such a lovely weekend and spoke to the group so openly and honestly that it really was very emotional but strangely heart warming too.
I spent loads of time with some of the folk i didn't get a chance to bond with at the last conference and so i feel a lot closer to the group now. Embarrassingly i still don't know a lot of their names but i know who all the WHS kids are! We shared loads of stories and experiences over sandwiches and/or wine and bonded over our little community of our little people. The parents are all so different but the bond between us is incredible and so genuine.
The kids, geez the kids are amazing and so loving. There was plenty of hand holding, cuddling and even a kiss (thanks Riley!). It was amazing to see how much they had grown and learnt new things, and it was so nice to see the changes too. What i noticed most was that the kids not only share the same physical features, disabilities and/or health issues but (most of them) share very similar vocal noises. There's a talk Littles and i have every single day and i found my self having the exact same talk with the lovely Bethany. And then there's the squeal, i thought it was just an Elliott thing but a lot of them seem to do it too.
We spent all day at Wet N' Wild yesterday but the weather was a bit crappy and far too cold for My Littles and most of the other WHS kids which was a bit sad but a great opportunity to get a few last yarns in before we went our separate ways and until we meet in Ballarat in two years time.
AND, a big fat WELCOME TO THE WORLD to my new nephew Maxwell!!
2 comments:
Sounds lovely! I am very glad to hear it was prolonged seizure free xxxx
Glad you had fun at the WHS conference. It is so refreshing to be with other parents and children who are living with WHS. I always leave those meetings encouraged and of course IN LOVE with the kids. Now, if only we could have a global conference one day!
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