Lover of Little Things

Back from the sticks.

2010-01-08T22:31:00.002+11:00

Hello!

Elliott and i are finally home.. YAY!

We've been so outta touch because December was crazy and i had loads of crafting to get out of my system but also because my Mac was ruined over the Shitmas break. I have a brand spanker now and i'm good to go...well for today anyway!

We headed off to Canberra a few days earlier than usual so i could spend some much needed quality time with my oldest and dearest peeps...i wish there was more time, but everybody is so bloody busy in December, even my booking two months in advance didn't work for some.

We spent a few nights at my sister's house which is always great and then headed off to Callalla Beach which is south of Sydney. The weather was hot for the first two days and then it rained and rained and rained...which the family wern't too happy about...but for me who is allergic to the heat and the sun...didn't mind so much at all!

Unfortunately, Elliott caught a cold before we left that got better and then worse, then better, and then worse throughout our entire holiday. The poor little bugger couldn't breathe through his nose at all which is really hard to watch, it's times like those that i kinda wish he were a "normal" kid, so he could just blow his nose or hock up that loogy to make it feel better. It's hard to watch him struggling to breathe so much. Even though i was waiting, waiting, waiting for the big daddy seizure to hit, it never did and thankfully so (obviously) particularly because we were in the bush or on the road which would have been even more terrifying than it already is.

We were sharing a bed which was pretty hard. It meant i had to lay down with him whenever he was due to sleep so he didn't commando off the bed. It was nice in a lot of ways but being woken up numerous times throughout the night for laps up and down the bed was not my idea of a restful holiday. Add in the coughing, snoring, farting and the feet in the face and you have one tired mumma.

To add to that, he cried, a lot...just like last year. I thought maybe he was over all the noise, and the people and that he was just dying to get home for a good old roll around the house without the fear of being trodden on. But no, it turns out he was extremely constipated and clearly very irritable from not breathing too well, and maybe about everything. He's much better now though...although i'm still recovering from my cold.

This coming week will be his first week at childcare. I'm scared but excited but scared, did i mention that already?? We headed off to get his 4 year immunisations and the Dr roped me into getting the Swine Flu vac too...surely it can't hurt ey? Too late now i suppose. I did it to protect Elliott more than anything.

For a few months now he's been able to grab and position his bottle into his mouth but often gets frustrated when the bottle is upside down. Sometimes i think he forgets how to do it, or he just wants me to do it for him, but today he proved to me that he knows exactly what to do... cheeky little bugger! I gave him his bottle and walked away and heard him drop it and let out a little whinge, so as per usual i picked it up (particularly to check that it wasn't blocked from the numerous powdered substances mixed in) and then gave it back to him. After a minute or two he did it again, so i sneakily watched him from the corner of my eye and as he thought i wasn't watching, he rolled over and picked up his bottle and put it straight into his mouth! *sniff* It was a lovely thing to watch. Deep down i know our WHS kids are cheeky buggers but it's just so awesome to see it happening, not only the amazing success and achievement of picking up a bottle but the genius of manipulating me and then checking to see if i'm watching. I'm so very proud right now! It's the little things people!

Saturday has snuck up on me this week, so i guess it's time for a song, a laugh and a dance. I loved this song back in my home-girl days, i still do, i can't help it! Of course back in those days there was no youtube so i had never seen the clip, but now i have and it's truly one to be shared. Enjoy... ladiieeeezzzzzzzzz.

Have a great day. XL

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Elliott's MASSIVE 4th Birthday weekend

2009-11-19T10:41:00.006+11:00

Well hello there. I know, it's been a while, but things have been a little crazy and i've been lacking sleep (not like Anna tho!) and have been a bit lazy about writing.

We have just had THE loveliest weekend. On Saturday we went to Ella's birthday party which turned out to be a pool party. It was just so great to be relaxing with great company and wonderful happy kids, it was definitely a day to remember. Elliott spent most of his time in a floating cabana chair (with palm tree and all) while Brendon and GH supervised and created some wicked waves for him. He had soooooooo much fun and it was a really special thing for me to watch, my heart was melting. I do get a little sad sometimes that he can't sit and play in the bath or have that sensation of floating in water, its such an amazing feeling to be floating, and I've totally taken that for granted. So, even though i have an absolute fear of the sun and the heat, i really want to try and get my little man to the pool this summer, he deserves to have that floating feeling in his life more often....well, in the very least, I'll look into getting us a pool for the balcony!

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After Ella's party, GH, AC, NH and i headed back to mine (with a few bottles in hand) to play some Pictionary and to make Chocolate Crackles. The fact that we left our brains at Ella's party made for some very interesting games...and stories! Me and NH had our arses flogged by the girls, all in all, good times, good times!

Elliott's Birthday.

We spent his actual birthday at home mostly but went out for a bit of lunch with Nan. Nan got him a chair which he seems to tolerate quite well, as long as i don't have anything to do with it because he's a stubborn little bugger when it comes to me and physio therapy.

His birthday party picnic was at Edinbourgh Gardens Fitzroy. I spent all week getting prepared for the big day, and all the hard work paid off and the party went down a treat i reckon. A big thanks to GH for your help! Again, i had a fear of the heat being out of control on the day, but it was perfect weather @ about 28 degrees....hoorahhhhh!!!!!...i still managed to get super sun burnt though.

We were especially excited to have Anna, David, Braeden and the dear little Ryley (8yrs) come to our party from Ballarat. Ryley has WHS too (you can meet him here), and i was so proud to be able to show him off to my mates who had already heard so much about him. What hadn't really occurred to me is that it could be an uncomfortable position for this family to be in, to come all this way to a party where they know no-one, but i guess because i know my mates, i knew that they would be made to feel more than welcome.....guests of honour if you will! Anna blogged about how she was nervous about coming for a few reasons, but soon realised that being around friends of a another WHS child means that you don't need to answer questions, you don't have to worry about people staring at your child, you don't need to explain why they don't talk or why they're so small....the list goes on.....but what you can do is, sit back, relax and feel no pressure about any of those things and more. I was so very chuffed to read that she felt like this but amazed to hear that it was for the first time in 8 years. I wish we didn't have to face these questions and stares, but i'm so glad they were able to relax for at least one day. Thanks again to you guys for coming. Oh and, they got Elliott a wicked mixing desk for his birthday too....AWESOME!!!

The most part of the day was spent mingling and wrangling children and moving the food out of the sun....and there was also a bit of bubble blowing and bubble drinking going on too. Pass the Parcel was a highlight, although i'm not sure how Elliott will go with his winnings...pencils...i was gunning for the bubbles!! Elliott scored some awesome gifts and i want to thank everyone who came along, who helped out and for just being there. His birthday, well everyday really, is an achievement in my eyes and it's super important to me to celebrate these achievements and his life, and to have so many supporters on board really warms my heart, so thank you.

Some other special friends of mine Kris, Brendon, Jackson, Millie (And *Lola*) came along, and not only helped out and spoiled Elliott (with THE coolest backpack you have ever seen wrapped in hand painted calico wrapping!!!), they stupidly, ridiculously got me an amazing gift too. I say, "stupidly" and "Ridiculously" because they were showing their appreciation for the support I've given them during their darkest days of losing their precious "tiny girl" *Lola*, and to me, i just wanted to be there for them, in any way i could....and you know what?.... this service i offer is FREE, it deserves no reward!! They say, i deserve it, but i was/am simply hoping to drill into you that i am here for you guys.... but still, i say THANK YOU anyway for thinking of me, it means a lot and i can't wait to book into the Thread Den and get busy with you Kris! MMMWAHHHH!!!

Lastly, on a medical note. Elliott had his EEG last week (not a good experience at all) and there looks to be a big improvement on his last one that showed seizure activity every 10 seconds which is great news. December is going to be super crazy for hospital appointments, we have Audiology, Opthomology, Cardiology and Orthopedic Surgeon appointments with a few blood tests, immunisations, x-rays and ultra sounds mixed in there too....eeerrrrrr....it's makin me tired just thinking about it! Wish him well hey....especially with the Cardiology and Orthopedic appointments.

Till next time, take care in this heat people.

XXL

Random Act of Kindness and Bummers

2009-10-25T14:36:00.005+11:00

Although I'm quite content at the moment, i found myself a little sad during the week.

I was on what some might think is a simple mission, a mission to buy my boy a birthday present. As i combed every nook and cranny in the massive toy department of Big W, i found myself getting more and more sad that i couldn't find anything suitable for him besides a ball or bubbles. Although i don't expect huge department stores to stock toys for developmentally delayed kids, i had just hoped to find him something fun, something that flashes and sings him a song or two, but no.

Thankfully today i did manage to find him something, it's a ball, but it has music, lights and a jack in the box....which will probably bring on a seizure from the surprise...but it will do and i think he'll like it.

Now for some unfortunate news. My new favourite person Miranda, is no longer my favourite person. It turns out she is a comic, but now i'm not so sure if she is genius, i think i'm too bummed out to accept how damn good she is at doing/being Miranda. Bugger!

So, i had a lovely day at my mates house, eating cake, drinking tea and wagging chins. I received an awesome "Random Act of Kindness" today from the lovely AC, a beautiful book of pretty snaps from around the world.... I'm a very lucky girl indeed!

To be fair, i think i should re-post my Sunday Song...but more because I'm bitter about Miranda... so, here is an amazing cover with a beautiful clip to boot, It's Jose Gonzalez doing Kylie's Hand on Your Heart.

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Sunday Song by Miranda

2009-10-25T11:13:00.003+11:00

So I've found my new favourite person, Miranda. She's quite a bit like David Brent of The Office fame... if you click on the video stream on the right you'll see who and what i mean if you don't know who i mean. The thing about Miranda is that I'm pretty sure she's not acting, but if she is, she's a bloody genius much like Ricky Gervais (David Brent).

It's hard to pick which clip to show you as they are all just so amazingk. Enjoy!!

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Sunday Song

2009-10-18T11:03:00.003+11:00

This is a song that i really dug when it came out a few years back (07 i think), but when i saw the clip i was in Love!

This is Ben Kweller's actual Grandmother workin it out in her basement in NYC, what a legend! The song is 'Penny On A Train Track'. I have danced around my house channelling Grandma Kweller many, many times and perhaps you will too!

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Awe not ore!

2009-10-17T23:40:00.002+11:00

.... in my last post i wrote of being in "ore" of my lovely friends....Ahhhhhh that made me laugh and has made me blush too....ahhhh dickhead!!!

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Out from under my rock.

2009-10-15T15:18:00.005+11:00

Hello! Yes i know it's been a while but I've had a whole lot going on and i just haven't wanted to write about it because it's too tiring to think about stuff any more than i already do.

But today, I'm feeling pretty good about things. We had a meeting with Elliott's new childcare centre this week that went really well and they are happy to accommodate to anything he needs, but the best thing is that they really feel it's important for Elliott and for the other kids to have someone like him in their group because it's so beneficial for everybody and i couldn't agree more. I love knowing that Elliott's cousins, our friends kids and school kids (and parents!) are going to grow up knowing Elliott and knowing that he wants the same as them, and that, is to be happy and healthy. The kids (and maybe some parents) may not know it now, but My Littles will teach them stuff that no book or teacher could properly teach them, and that's empathy, tolerance, understanding and an appreciation that we're all humans that we all need love and happiness bust most of all, that it's absolutely okay, even cool, to be different. Differences are what makes us all interesting after all.

We spent the most part of last week in the hospital. Littles picked up his first ear infection, pretty good for a (almost) 4 year old! He also had another 'unknown' virus which brought back the rash and the high temps of 40.1. He would have been home earlier but his Neurologist didn't want us leaving without having knowledge of CPR and 'bagging' but the appropriate nurses weren't available so we weren't allowed to leave and luckily so because his temp was through the roof and he had another tonic clonic seizure in the early hours. He managed okay in hospital, he even managed to sleep through the overnight hourly treatments (a.k.a. tourture) of the kids in our neighbouring beds... although i wasn't so lucky! Even though i was so sleep deprived it really helped to have nurses that i could rely on, they were fantastic and were on top of everything, It was only once that i had to ask (a.k.a. beg) for Panadol and that was to a new nurse who had only just begun her shift. So a big thank you shout out to Felicity, Amanda and Franchesca...even though your not reading this, i'm sending you good vibes anyway!

Besides all the Elliott business, I've been busy with lots of things.... editing on The Boldness.... next Wednesday @ 6pm on 3cr am, meeting up with the girls and getting inspired and motivated to create! We have a busy few months coming up (when isn't it busy really??!!) but i'm really hoping we do manage to get our "crafternoons" up and running, it would be good for all involved i think.

I'm also feeling really appreciative that i have such awesome, loving and inspirational friends and i fall more in love and in awe of each of them every day, i'm a very lucky girl.

Hmmm yis, so i think that's about it for now. Hmmm perhaps i'll post a song because i've missed a few 'Saturday Songs'...ah yes, one of the greats comes to mind today....

Sunday Song

2009-09-27T20:07:00.004+10:00

So i obviously missed my Saturday song, i was too busy re arranging my lounge room and dancing around. So, it's a Sunday song instead. This one pops up quite a bit in my (lounge room) set lists, and i still love it just as much as i did in hmmmm 1987(?).

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Saturday Song

2009-09-19T13:07:00.002+10:00

My Saturdays have always started with Video Hits and Rage, and when they are over, i will either put on a record or if if I'm feeling lazy, i'll let my itunes decide what to listen to. So, i thought a Saturday Song would be a good way to let you know what I'm listening to and a reminder to me to post something!

Today's post is The Wolves (act I & II) by the ammaaaaazzzzziiinnggggg Bon Iver. There are a few stand out records that have changed my life, For Emma, Forever Ago is one of them.

Get a cup-a-tea, plug in your speakers, turn it up loud and be prepared to be blown away. Enjoy.

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Saturday Song

2009-09-19T12:23:00.007+10:00

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WHS Conference 09

2009-09-08T16:23:00.006+10:00

We are home safely and (prolonged) seizure free thankfully...although I'm not so sure what went on with Littles today because he slept from midday to 4pm....we'll see where the night takes us i suppose.

This year it was in Coolingatta/Tweed Heads and organised

by J & S who are the lovely parents of Amy who sadly passed away in October 07. It was emotional for all of us knowing Amy wasn't with us but so much more so for J & S as you can imagine. They put on such a lovely weekend and spoke to the group so openly and honestly that it really was very emotional but strangely heart warming too.

I spent loads of time with some of the folk i didn't get a chance to bond with at the last conference and so i feel a lot closer to the group now. Embarrassingly i still don't know a lot of their names but i know who all the WHS kids are! We shared loads of stories and experiences over sandwiches and/or wine and bonded over our little community of our little people. The parents are all so different but the bond between us is incredible and so genuine.

The kids, geez the kids are amazing and so loving. There was plenty of hand holding, cuddling and even a kiss (thanks Riley!). It was amazing to see how much they had grown and learnt new things, and it was so nice to see the changes too. What i noticed most was that the kids not only share the same physical features, disabilities and/or health issues but (most of them) share very similar vocal noises. There's a talk Littles and i have every single day and i found my self having the exact same talk with the lovely Bethany. And then there's the squeal, i thought it was just an Elliott thing but a lot of them seem to do it too.

We spent all day at Wet N' Wild yesterday but the weather was a bit crappy and far too cold for My Littles and most of the other WHS kids which was a bit sad but a great opportunity to get a few last yarns in before we went our separate ways and until we meet in Ballarat in two years time.

AND, a big fat WELCOME TO THE WORLD to my new nephew Maxwell!!

what now?

2009-08-28T22:33:00.002+10:00

What a crazy week we've had.

My weekend began with a much anticipated night away with my homies. We had it all worked out, good food, good grog, awesome company, a bit of Chibo (card game) and a whole lotta dancing. We started on the drinks as soon as we (finally) got the key in the door. We managed to cook dinner and get a game of Chibo in just before the power went out. It was funny at first because i think we assumed the power would come back on, but it didn't, so we froze ourselves silly and drank until the wee hours...like all good Aussie battlers would of course! It was a shame to miss out on the dancing but it was an awesome night anyway.

The following day it began. Oh the sickness. Oh the tears. Oh the sickness. We ended up getting home pretty late because of my sickness and thankfully Mum was okay to have Littles for another night while i recovered.

I picked Littles up and we lay around for the most part of the day. He fell asleep on the floor (which isn't unusual) and i decided to shut my weary eyes for a few minutes. I could hear Neighbours starting and then woke up properly when Littles went into massive fit mode.

I called the Ambulance and watched and waited in horror. One of the Ambo's had My Littles on her lap as she sat on a trolley/chair thing, he was still fitting terribly and was being "bagged" while we caught the elevator.

Much to my disgust, my neighbour was on the ground floor holding numerous bottles of half drunk liquor and said to me "what's goin on 'ere, Swine Flu?", I said "that's not actually funny dude" and we kept on moving out to the front of the building. While we're out the front i can hear him yelling and coming towards us. And because i'm so scared of this disgusting mess of a man and don't want him as an enemy, i turned around to give him a "it's cool" kind of look and he came out ranting "don't let them do nuthin, all he needs is Eucalyptus Oil if it's Swine Flu, Eucalyptus Oil will fix it!!!!". What really upsets me about this is that for a few moments there i was more worried about that psycho than i was of My Littles.

So anyway, it took about 20 minutes for them to stop the fit and approximately 4 days to give me inconclusive answers. At about 10:30pm they sent me home to get his new medication (Zorontin) so i came home, packed my bag but packed the wrong bottle of meds. So Mum drove back to my place to get it while i sat and watched my boy coming off the Midazolam and shivering like crazy. Oh hindsight hey... They gave him the meds that Mum went to get and within hours he was completely covered in a nasty rash and his eyes were so swollen that i could hardly see his usually big and beautiful googly eyes. He spiked a 40.3 temp and was admitted to the ward.

I was told a few different/conflicting things (what a surprise!) and I'm still none the wiser about what and why all this happened. All of his tests were clear and they hit me with yet another diagnosis of a "viral infection". I'm going with a severe allergic reaction to the new meds and coming off a drug (phenobarbitone) that seemed to actually stop these big nasty seizures. I'm told that Phenobarb is no good, but if it stops the seizures then I'd be inclined to say it's good.

We're finally home and Littles is doing well. He's a little on the whingy side but i think i'll allow it!

I'm really hoping the new medication (Frisium) will help for the obvious reasons but also so we can go to the WHS conference next weekend. Just the thought of being stuck on a plane with a seizure like that is extremely daunting.

Today, i felt bored, so bored and weirded out that i had nothing to do. I didn't feel like doing anything though but didn't want to do nothing either. Luckily AC came around for a pie, a few Profitterolls, a coffee and a yarn or else i would have been pulling my (straightened out of bordom) hair out.

Now I've blogged this epic, what now? Oh yeeeaaaahhhh my bed!

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Gone Fishing?

2009-08-21T10:28:00.003+10:00

Something very very strange has taken place between 9pm last night and 9am this morning.

The largest of my three goldfish has completely disappeared, nowhere to be found! I have scoured the floors and around the benches, i even took a little squiz into the bin in case he flipped himself in there, but nup, nuthin. I can't see how the little ones could have eaten him and there aren't any remnants of him left over in the bowl, so where is he??? I must admit, I'm kinda freakin out about this! I need answers!

Gh suggested that maybe he's with the missing Flaming Lips ticket but perhaps he's just gone fishing.

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Briefly.

2009-08-20T12:34:00.003+10:00

Just a brief update.

Elliott seems to be doing better today, he's back to river-dancing and eating fairly well. The great news is that he has put on almost a kilo in a month, A MONTH!!!, so we will be extending our middle finger's to his Paedatrician next week....perhaps not literally....we'll see on the day!

We're off to the see his Neurologist today which will no doubt bring more medication and hopefully some answers. Whatever Dr, just make them stop PLEEEAAASSSSSEEEEE!!!!!!

Have a lovely day my friends.

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What's crackin

2009-08-18T17:23:00.007+10:00

Making : Faces with Littles

Cooking : carbonara

Drinking : coke zero

Reading: feel- Robbie Williams biography ha!

Wanting: to know if my littles is okay

Looking: at my lovely new 'her royal flyness' bag

Playing: bon iver- 'to emma with love'

Wasting: time waiting for my next editing gig to download

Sewing: a garter for a bride i don't know

Wishing: elliott could tell me he is okay...and that i didn't lend out my moonwalker book...i'll never see it again and it's out of print...dud.

Enjoying: my choc covered peanuts

Waiting: for the day i hear the word Mumma from my littles

Liking: having lovely people in my life

Wondering: what interviews i should conduct at the whs conference

Loving: you

Hoping: you had a good day

Marvelling: at the marvellousness of this city

Needing: a haircut

Smelling: bleach

Wearing: the usual- jeans and a black cotton knit

Following: this and that

Noticing: that robert got his own lyrics wrong on the live track 'untitled'

Knowing: i should not sweat the small stuff

Thinking: it's hard not to sweat the small stuff sometimes

Feeling: like i shouldn't have had those nuts

Opening: my tired eyeballs

Giggling: at littles riverdancing on me

Feeling: anxious

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Another one of those days.

2009-08-17T19:28:00.004+10:00

It's been another one of those days. My poor Littles has been having fits for most of the day and I'm thinking they must have started at least yesterday. He spent most of the day sleeping and I've spent most of the day watching him like a hawk and wondering if he needs to go to hospital. It's always such a confusing time because I'm pretty sure he's not sick, and if i drag him off to the hospital they'll just observe him and no doubt send him home so i'll just keep him here for now.... i think? We'll see, and take each minute as it comes hey.

On an up note, i had a really lovely weekend. It started on Friday where i met with some lovely ladies (and kiddies) and shared some yummo food and a few yarns, a much cherished day indeed. On Saturday i went on an awesome bar hoping mission with the good folk, it was purely for educational purposes of course! And just to add some adrenalin to the night we intercepted some mashed up kids from stealing a bike and somehow avoided being glassed by the really trashed kid in the group. And much to my delight, i woke with no glass or hatchet in my eyeball...wahooo! And on Sunday i bunkered down from the crazy winds and watch season 3 of Weeds...is there a season 4??

Ahh he's awake, gotta get my eyeballs onto him.

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2009-08-08T21:32:00.000+10:00

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My nostrils are burnt.

2009-08-08T14:50:00.004+10:00

So much has been goin on in my head that i just haven't been able to write about it and really, It's all mostly sad stuff and shit stories...but this entry is not so sad but just so so SO disgusting i had to write about it...but it's also a shit story.

Today i thought I'd go for a lovely walk around the hood and maybe purchase myself something nice to cheer me up but instead I am sitting here blogging....because today, only one elevator is working and the other one is smeared, i mean SMEARED with human shit. So I'm stuck up here on the 14th floor... about to run out of cigarettes!!!

Just yesterday i was talking to my mate about how I'm trying not to let this building get to me because i then inevitably start thinking about my life, and how i got here and where I'm going which is all very overwhelming to me. I've written about my neighbour but that's just the tip of the iceberg. There's violence, there's drug addicts, there's garbage everywhere and there is HUMAN SHIT SMEARED IN THE ELEVATOR. What is going on man? Why? Why would you do that? Perhaps that tinny of Jim and Coke has something to do with it. I'm so disgusted i can't tell you. Why? Why? Whyyyyyyyyyyy?

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While i was sleeping...

2009-08-03T16:47:00.005+10:00

Things are looking up this week, wahooo! The boy is doing well and has recovered incredibly well from Seizure Fest. He's playing his keyboards at the moment when he should be sleeping....hmmm wish i were sleeping.

I wanna say a Big Thanks to everyone who offered their Love, soup and support last week.

Well, it seems my appearance on Deal or No Deal with GH and EL went to air on Friday and we missed it! I was so knackered from Seizure Fest, Beer Fest and The Lips Fest that Littles and i had a nap while it was on...bummer! Sources tell me my hair looked "Hot" and i didn't make a Dick of myself which means they must've edited it well because i was a total Dick on the day it was shot. Below is my lovely Blythe who came along too.

My heart and thoughts are always goin out to K, B, J, M and L but especially for tomorrow. BIG HUGS. XL

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O what a night, O what a day.

2009-07-30T19:26:00.003+10:00

Boy I'm buggered.

We had planned to have dinner and a few beers before The Lips but somehow NH lost one of tickets between his house and mine which is about 200 metres in distance, so we searched the streets and turned his bedroom up-side-down....which brings me to a highlight of the night. As i bent over to look behind NH's laundry basket there was this loud banging on the door and a scream of "oi! (bang bang) OI!! (bang bang) OI!!!!! (BANG BANG BANG)". It turns out NH's flat mate thought i was robbing them! I guess i did look a bit suspicious in my long leather jacket and peering through his stuff....with a beer in my hand. She wouldn't have been able to see my face because i was bending down so when i turned around and NH got up from under his bed she was MORTIFIED! It was hilarious! So anyway, we didn't find the ticket, we didn't eat dinner but we did squeeze in a travelin' beer here and there and we did manage to get a replacement ticket from the venue....phewww!

The Lips were amazing, something i already knew. Wayne (Lead singer/Songwriter) put himself into a massive clear balloon and rolled over the crowd as his entrance, pretty cool indeed and he seemed to be loving it. I could rant about how amazing they were but i won't. You know, there's always THAT couple who come from standing just behind you and then choose to move just in front of you... particularly if your the short-arse in the group...and yep, that was me last night. So they moved in front of me, they slobbered all over each other, they groped each other's arses and just when i thought it couldn't get any worse...he pulled out a ring and proposed! Needless to say, it got more disgusting because she said "yes". There's lots more i could say about them and the rest of the night but all i will say is, we moved positions, we loved Wayne and Co, we drank more beer and finally had a dirty (but sooo delicious) souvlaki at 1:30am.

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I woke this morning to a hatchet imbedded in my eyeball, i drop a few pain killers, skull some water, head back to bed and turn on my phone. Minutes later Mum calls to tell me Littles is having a massive Tonic Clonic seizure and that the ambulance was on it's way. The seizure lasted around 20 minutes which is not by any means a good thing. Poor Nan, she looked horrified as she arrived in the ambulance with him on her lap and rightfully so because it's a horrible thing to have to watch and to be almost useless in aiding. We spent most of the day in the emergency department and after a bit of poking, prodding, a change in medication and a snooze, we came home. As soon as he got home he was stoked, he was rolling, squealing and Riverdancing all over me as per usual and was as happy as can be. He managed to nod off while i watched 'The United States of Tara'-Awesome Toni Collette playing a Mum with multiple personalities and Chris from Northern Exposure plays the husband!- Wednesday 9:30pm ABC!!!....anyway, he unfortunately got woken up by another seizure....and repeat. Today was another reminder that his mood doesn't always resemble what's about to happen. He is now lying on the floor sleeping off the emergency meds, poor little fella. It feels like it's 3 in the morning but noooo, it's only very early...we'll be right, we always are.

Oh and a MASSIVE HAPPY BIRTHDAY TO EG, i hope you keep on having lovely celebrations. XX Love you.

A gig, an actual gig!

2009-07-29T15:34:00.002+10:00

Wahooooo... I'm off to see The Flaming Lips tonight and I'm so very excited to going to a gig, an actual gig!

I pretty much chucked in going to gig's when i decided to become a sole parent, and considering I've been to a million and one fantastic gigs in the past, chucking it in wasn't a worry for me. Sure, I've missed a lot of acts that I would have loved to have seen (the list will be endless!) but having My Littles far out-weighs any dirty, stinky, rockin gig...oh hang on, there not so stinky anymore are they?? Besides, we rock out together in our lounge room everyday.

Nan came and picked up Littles for a sleep-over at her house, but being here at home with him not here is really strange. My ears and eyes are still in 'Alert' mode in case i need to walk over the Rolling Wonder or if there's a seizure that needs my attention. When i get respite, i usually get out of the house so this is weird and reminds me of the times I've come home while he's in laying in hospital. Oh well, he'll be having a blast with Nan without even the slightest understanding that I'm here, writing to you, about him.

Hmmmm what to do, what to do? Must stay busy.....Ah yes, I know, a friend has asked my to make a garter for her mate whose getting married, so perhaps I'll give that a crack.

I'd like to shout out to my friend AC who had to give up her ticket tonight, we'll be thinking of you!

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The Boldness

2009-07-28T21:17:00.002+10:00

I'm on board! My mate Alex asked me to get involved with The Boldness- a show she produces on 3cr radio. So, I've just edited my first show! I can't remember the tech term for the type of show (sorry Alex!) but it's an ongoing on-air skit called Big Wigs. I'm only a beginner but i have really enjoyed learning to edit and i look forward to learning and doing more with the station.

"The Boldness is a half-hour magazine style programme with hosts, crew and producers who have disabilities: from Jim the blind technician, to Michael the deaf presenter and the fabulously unstable Jane and Macca!

The Boldness is an initiative of Grit Media. The idea was simple, world domination via the airwaves. Bold topics, bold people, bold radio! Tune in to hear the fabulous hosts Macca and Jane discuss all manner of human rights with a disability bent. In the vein of the BBC's Ouch, it's funny, controversial and probably blasphemous too, what else can you expect from a bunch of cripples?"

Third Wednesday of each month,
6 - 6.30 pm

www.3cr.org.au

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Flash player anyone??

2009-07-27T23:30:00.002+10:00

I've just spent the last while trying to add a music player to this thing but my tunes didn't show up, so if anyone knows of the URL for a player that actually works and isn't too ugly, can you let me know please??

Oh... and be sure to check out the second video listed of Grape Lady, if you tend to laugh at people in unfortunate pain then you'll love this...her noises are amazing!

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2009-07-27T22:45:00.000+10:00

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Raspberry Littles

2009-07-27T19:34:00.000+10:00

This video was shot when Littles was around 12 months old i think. It's amazing to see so much chubb on him and those elastic bands around his wrists (not literally!). If only it were that easy to have that chubb back....there's only so much butter, poly-joule and good food can do for WHkid....if only our Peadatrician could understand that.

I made this!

2009-07-27T10:42:00.000+10:00

Meet Me At Mikes is having a wee competition to win one of Pip's newly renovated books...yes please!

These are some things i made for a lovely girl named Milly. This-morning i woke to my doorbell and considering my recent neighbourly going's on, i took my sweet time to answer (and put pants on!) in case i was in for another rant-a-athon. When i opened the door it was a (not so happy) delivery man with a sweet little bunch of purple flowers for me from Milly...a much nicer thing to wake to. Thanks Milly!

Thy WILL NOT love thy neighbour.

2009-07-26T22:07:00.000+10:00

Gross. My neighbour is gross. He had an extended rant AT me today regarding, geez, it went from the broken laundry door to his drug habit to his lice and infections to his birds to him accidentally killing one of his birds to him eating his dead birds eggs on toast for breakfast to borrowing a lemon from me to make his herbal concoction to smear on his infections and to mix with his alcohol...and it goes on and on and on....and then (gasp- if you haven't gasped enough already) he introduced himself. I hope this isn't the beginning of yet another one-sided neighbourly friendship with a psychopath.... and i also hope i will have other things to write about other than him...but I'm sure there will be more to come unfortunately....uuuugggghhhhhhhh.

Love thy neighbour.

2009-07-25T19:28:00.000+10:00

I hate neighbours, i really, really do. Today i was interrupted by my drug dealing/taking neighbour who went on a raving rampage of hatred for those who live amongst us due to him not being able to get into the laundry. Now, I'm sure there is some underling psychosis, be it drugs or his mental health but he actually had me believing his paranoid theory as to why he couldn't get into the laundry...somebody in the building is changing the locks so they can have their own personal laundry (and garbage shoot). It's really very annoying because i need that garbage shoot! When he began ranting about his bodily infections and pulling up his shirt to show me the infections was when i backed away from the conversation....eeeeeewwwwwww! What amazes me is that he doesn't seem to realise that HE is the bane of our floors existence with his constant yelling, kicking, spitting and his disgusting clientele tapping on his door all through the days and throughout the nights. There's not much i can do about him really, as I'm too scared of any repercussions and housing couldn't give a crap, so i guess i'll have to learn to love thy neighbour....my winning lotto will come sooner than that though..ha.

A new adventure?

2009-07-25T18:45:00.000+10:00

Well, this is it, a blog about me and my dear little man Elliott. I'm not sure how it will turn out but i thought I'd give it a crack. I've been reading a couple of blogs recently, one in particular which has given me an insight into how blogging can have such a positive effect on not only the writer but the reader also, so, i thought it might be a good for me to write our lives down and a good way for me to keep track of Elliott and for you to have an insight to our lives.